Constant Pain: In Response to Blog Post – What Happened To My Life

photo credit: r.nial.bradshaw via photopin cc

photo credit: r.nial.bradshaw via photopin cc

I was inspired by this blog post: What Happened to My Life, (Posted by lhicks10—April 4th, 2013 on Migraine.com) to write this article.

What the author wrote sounds so much like my life. I got my first migraine at 15. At that time though they only came once a year to every six months. By the time I was 18 they were becoming more and more frequent. When I hit my 20’s I started suffering from Chronic Migraine.

I’m now 34 and have been living with chronic daily headaches and intermittent migraines (with a host of symptoms), for more than 11 years. I wake up with a headache, go about my day (if at all possible with a headache), go to bed with a headache and then the cycle starts again the next day. I am ALWAYS in pain. I NEVER get any relief and I suffer AT LEAST one migraine per week – migraines with severe to excruciating headache and silent migraines. I spend 80% of my life at home, in the dark and in bed :(.

We’re not sure if I’m in a perpetual cycle of migraine or if they are intermittent as one doctor described them.

Since I never have any relief, my husband and I – and my parents before that – haven’t been able to decipher my triggers other than sunlight, changes in barometric pressure and not eating on time.

As you can imagine, my circumstances are very frustrating and depressing. I’ve become a completely different person. I’m now terribly self-conscious. I’m becoming more and more reclusive and I’m becoming a germaphobe – which is ironic because I can barely do chores lol :).

Over the years I have had MRIs, Angiograms, CAT Scans, seen a number of neurologists, chiropractors, ear, nose and throat specialists and the list goes on, all to no avail. In fact, a few of my migraine episodes were so severe that I had to go to the hospital. Whatever they gave me on those occasions put me to sleep, but when I woke up the pulsing migraine headache was gone, but the regular headache was still there. I jokingly call my daily headache,  “the Energizer Bunny,” because “it just keeps going and going and going …” :).

“Anyhoo” I feel like I’m rambling now. If you got this far thanks for sticking with me :). I hope one day to write an article stating what I did to beat this vicious disease. Until then I will continue searching for and placing the pieces of my migraine puzzle.

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2 thoughts on “Constant Pain: In Response to Blog Post – What Happened To My Life

  1. Wow, I feel like I could have written that about how things are with me as well. I am sorry you are going through this too. I am 21 years old and I have had migraines since I was 9. I saw your comment on migraine.com in response to that article which related to me as well. I have had chronic daily migraine for the last 2 years. I feel the same way about not knowing if it is one continuous headache or multiple different headaches, which is why it is so hard for me to find my triggers. I guess I’m trying to look at what makes my migraine more severe that day, but so far no luck. I have been to 6 neuros and tried over 18 meds (preventatives+abortives), and I have had little or no success. I have also been the ER many times to try and break the cycle and even that didn’t work sometimes. I know how hard it is to live with pain everyday, wake up with it, go to bed with it. Its hard to have hope, but somehow I still have some hope that one day I will get better, and that one medication will work for me. It doesn’t help that I’m so sensitive to meds, so I’m so scared to try new things. I know what you mean when you say the pain has changed you. Pain has changed me too, for the good and the bad, I mean I guess I learned how to be stronger and a bit braver and more grateful. I have also become very depressed, moody and anxious on the other hand. All i want is to feel like the normal me again or close to who i was. The meds are also causing the mood changes. I wish you the best of luck in your journey and I hope we can keep in touch with each other. I love your blog btw, I followed you! If you have some time, check my blog out 🙂

    • Thx for your comment. I wish you all the best too. I’m so sorry you’ve been suffering with these since you were 9 wow! I will definitely check out your blog.

      I find reading blogs from other migraineurs helps me to feel less alone, less worthless. It reminds me that I am not weak. This disease is real and it ravages us. Reading the experiences of others also helps me to be more positive because I feel like we’re fighting together.

      I too have hope that one day we’ll learn to control our migraines and or rid ourselves of them.

      Take care,

      – Skylar

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